If your neurologist has ever asked "how bad are your migraines?", you know how hard that question is to answer. Pain is subjective. Frequency is easy to forget. And the real impact of migraines on your life is almost impossible to summarize in a sentence.
That is exactly the problem the MIDAS score was designed to solve. The Migraine Disability Assessment is a simple, clinically validated questionnaire that translates your migraine experience into a number your doctor can act on. It is the most widely used tool for measuring migraine-related disability worldwide, and understanding how it works can change the way your migraines get treated.
What MIDAS stands for and why it exists
MIDAS stands for Migraine Disability Assessment. It was developed by Dr. Walter F. Stewart and colleagues and published in 2001. The goal was straightforward: give doctors a fast, reliable way to understand how much migraines are actually disrupting a patient's life, without requiring weeks of detailed diary keeping.
Before MIDAS, doctors often relied on patients describing their migraines in vague terms during short appointments. Patients would say things like "they're pretty bad" or "I get them a lot," which does not give a neurologist enough information to make good treatment decisions. MIDAS replaced that guesswork with a standardized measure that takes less than five minutes to complete.
How the MIDAS score works
The MIDAS questionnaire asks five questions, all covering the past three months:
Question 1: How many days of work or school did you miss because of your headaches?
Question 2: How many days was your productivity at work or school reduced by half or more (not counting the days you missed entirely)?
Question 3: How many days did you not do household work because of your headaches?
Question 4: How many days was your household productivity reduced by half or more (not counting the days from question 3)?
Question 5: How many days did you miss family, social, or leisure activities because of your headaches?
Each answer is a number of days. You add up all five numbers to get your total MIDAS score.
There are also two additional questions (labeled A and B) that ask about headache frequency and average pain intensity. These do not count toward the score but give your doctor additional context.
What your MIDAS score means
Your total score falls into one of four disability grades:
Grade I (score 0-5): Little or no disability. Your migraines are not significantly impacting your daily activities. Treatment may focus on acute (as-needed) medication.
Grade II (score 6-10): Mild disability. Migraines are causing some disruption. Your doctor may consider adjusting your acute treatment or discussing whether a preventive might help.
Grade III (score 11-20): Moderate disability. Migraines are meaningfully affecting your work, home life, or social activities. This is typically where doctors begin seriously considering preventive treatments if they are not already in place.
Grade IV (score 21+): Severe disability. Migraines are causing major disruption to your life. This score usually warrants aggressive treatment, which may include preventive medications, specialist referrals, or combination therapy.
Why your MIDAS score matters for treatment
Here is why this number matters more than you might think: research has shown that MIDAS scores correlate well with clinical judgment. When neurologists independently assessed migraine patients, their evaluations closely matched the disability grades indicated by MIDAS scores.
This means that walking into an appointment with a MIDAS score gives your doctor a reliable starting point for treatment decisions. A patient with a score of 35 needs a fundamentally different treatment approach than a patient with a score of 8, and the MIDAS score communicates that clearly in a way that "my migraines are really bad" does not.
MIDAS scores also help track whether your treatment is working over time. If your score drops from 28 to 12 after three months on a new preventive medication, that is concrete evidence of improvement. If it stays the same or goes up, that tells your doctor the current approach needs to change.
How to calculate your MIDAS score accurately
The questionnaire is simple, but there are a few things that trip people up:
Think about the full three months. People tend to undercount because they forget bad days from weeks ago. This is where having a migraine tracking record helps enormously. If you have been logging your attacks in an app or diary, you can reference it instead of relying on memory.
Count partial days. If you left work two hours early because of a migraine, that counts for questions 2 or 4 (reduced productivity by half or more). Do not only count full missed days.
Include all headache types. MIDAS covers all headaches, not just migraines. If you also get tension-type headaches that cause disability, include those days too.
Be honest, not heroic. Many migraine sufferers push through pain and underreport disability. If you worked through a migraine but were functioning at 50% or less, that counts. The score is meant to capture real impact, not just days you called in sick.
MIDAS and migraine tracking apps
One of the challenges with MIDAS is that it asks you to remember three months of impact, and human memory is unreliable. Studies have shown that patients consistently underestimate their migraine frequency and disability when relying on recall alone.
This is where migraine tracking apps add real value. If you have been logging attacks with dates, severity, and whether they affected your work or activities, calculating your MIDAS score becomes a matter of reviewing data instead of guessing.
Some apps, including MigrAid, calculate your MIDAS score automatically based on your tracked data. You log your migraines as they happen, and the app generates your score from the actual records. This eliminates recall bias and gives you a more accurate disability assessment to bring to your doctor.
When to calculate your MIDAS score
Before every neurology appointment. This is the most important time. Having a current MIDAS score gives your doctor a standardized measure to assess your current state and compare it to previous visits.
When you think your migraines are getting worse. If you feel like things have changed, calculating your MIDAS score can confirm that feeling with data. A score that has jumped from Grade II to Grade IV gives you and your doctor a clear signal to act.
After starting a new treatment. Recalculate after 2-3 months on a new medication. Comparing your before and after scores is one of the best ways to evaluate whether the treatment is actually working.
When advocating for yourself. If you feel your migraines are not being taken seriously, a high MIDAS score is concrete evidence that your condition is causing significant disability. It speaks a language that healthcare systems understand.
MIDAS vs other migraine assessment tools
MIDAS is not the only migraine assessment tool, but it is the most widely used. Here is how it compares:
HIT-6 (Headache Impact Test) measures the broader impact of headaches on daily life, including pain severity, functional limitations, and emotional distress. It uses a different scoring method (six questions with five-point scales) and captures dimensions MIDAS does not, like emotional impact. Some neurologists use both together.
MPFID (Migraine Physical Function Impact Diary) is a daily diary-based tool that captures real-time impact. It is more granular than MIDAS but requires daily logging, which makes it harder to sustain.
MIDAS remains the most popular choice because it balances simplicity with clinical utility. Five questions, three minutes, one number that your doctor already knows how to interpret.
The bottom line
Your MIDAS score is probably the single most useful thing you can bring to a neurology appointment. It takes less than five minutes, translates your subjective experience into an objective measure, and directly influences treatment decisions.
If you are not currently tracking your migraines, start now. Even three months of basic data (when attacks happen and whether they affect your activities) is enough to generate an accurate MIDAS score. And if you are already tracking, check whether your app can calculate it automatically so you always have a current score ready for your next appointment.
Migraines are often undertreated because patients underreport their impact. The MIDAS score is a simple tool that makes sure the real story gets told.
Try MigrAid
MigrAid calculates your MIDAS score automatically from your tracked data. No manual questionnaires, no guessing from memory.
Download for iOSReferences
Stewart et al. (2001) - Development and Testing of the MIDAS Questionnaire, National Headache Foundation, MDCalc MIDAS Calculator, Scripps Health MIDAS Guide, American Migraine Foundation.